Yes I started this post months ago and so yet again it seems a bit odd, but rather than re-write the whole thing I thought it best to just add to it. Unfortunately I added to it at a couple of points and then ended up not being able to finish!! I hope it's not … Continue reading When the crafty bug hits………again!!
Firstly I yet again have to start with an apology for the lack of posts. I had a couple of posts ready to go but without photo's before I went into hospital, but didn't want to just find photo's to use I wanted to have taken them myself (the found photos weren't quite right for … Continue reading When your body is shouting stop, what would you do?
No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I've started the following post about half a dozen times. It's been easy to write in the sense that the words have come easily but, as you will see, actually writing the post has been hard. I've lost over 3 copies and had interruptions and problems, with family being here, finding time to myself. So … Continue reading Sensory Overload!
Sunday saw me heading down to Dunsfold aerodrome for Wings and Wheels. As if explained before I'd not so much been looking forward to it, rather worrying but thankfully nothing beforehand went wrong so mobility scooter dismantled and packed and emergency kit supplemented with 2 bottles of icy water and a cold water spray (and … Continue reading Wings and Wheels
I never thought that at the age of 38 without a baby that I'd be packing a bag of essentials to carry around with me. Unfortunately with the "unspeakable problem" screaming so loudly at the moment I've had to create my emergency kit so that whenever I go out for more than a few hours … Continue reading My emergency kit bag!!
I've been thinking long and hard about what to write. I have realised that much as I want to keep up with my blog on the whole my life just isn't that interesting!!! However yesterday after looking back my trip to the garden centre was actually quite amusing, although it may not be so much … Continue reading Plant delivery on a mobility scooter!!!
On the whole I avoid contact with mirrors and cameras, they are evil things that show up the slightest of floors. I even only look at the bit I'm doing in a mirror on those rare occasions I wear make-up, I've perfected the just looking at an eye or my lips and not seeing my … Continue reading Blood pooling, and pregnancy looking swellings .
So it struck me again this afternoon what a mass of contradictions I really am!! I was sat doing a jigsaw puzzle (another one of the things that eds has curtailed, but more about that later!!) watching first the end of Le Mans 24 hour race and following that one of the top gear specials!!! … Continue reading A mass of contradictions!!!