Meet my new mascot & the life of a grown up fiddler!!

Firstly this post has been written for a few weeks now, just waiting for photos which I took the other day.  Unfortunately my brain fog, summer holidays and severe writers block has left me with no posts to update you with!!  I'm hoping that I might be able to remedy this over the next few … Continue reading Meet my new mascot & the life of a grown up fiddler!!

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Catheter woes and what is a supra-pubic catheter??!!

No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!

Yet more appointments and the funny places your mind goes in the middle of the night!!

This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!

Sensory Overload!

I've started the following post about half a dozen times.  It's been easy to write in the sense that the words have come easily but, as you will see, actually writing the post has been hard. I've lost over 3 copies and had interruptions and problems, with family being here, finding time to myself.  So … Continue reading Sensory Overload!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

Wings and Wheels

Sunday saw me heading down to Dunsfold aerodrome for Wings and Wheels. As if explained before I'd not so much been looking forward to it, rather worrying but thankfully nothing beforehand went wrong so mobility scooter dismantled and packed and emergency kit supplemented with 2 bottles of icy water and a cold water spray (and … Continue reading Wings and Wheels