.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!! The reason that it is late is because last … Continue reading Appointments again, and when minor victories feel like winning the lottery!!
Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time. My only other contact can be through a screen with either people I've never met, or rarely meet. It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!
As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit. I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!
We were playing a game with my niece yesterday and I realised that I'm just a very complicated person. I know that I'm definitely not the only one that there are many others who are, but it's not just medically that I'm so complicated in!! Medically I know I'm complicated, as is anyone with a … Continue reading I’m complicated
I've had a long week again. 2 hospital appointments and getting ready for my mum to go away (my sister and my niece will be staying with me to help me), and so I've been struggling again in more ways than one. The problem has been my brain fog again which has been awful. I've … Continue reading Brain Fog strikes again!!
This last week I have been finding very hard to cope with. It's partly been the 3 different appointments I've had, it's partly been the weather but what has totally floored me has been the cold my gorgeous niece shared with me!! You'd have thought that with all the conditions I have and the fact … Continue reading Floored!!
I found out yesterday (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!
Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!
Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
Sunday saw me heading down to Dunsfold aerodrome for Wings and Wheels. As if explained before I'd not so much been looking forward to it, rather worrying but thankfully nothing beforehand went wrong so mobility scooter dismantled and packed and emergency kit supplemented with 2 bottles of icy water and a cold water spray (and … Continue reading Wings and Wheels