I found out yesterday (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!
Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!
Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
As I've not had so much time to write and post recently my next few posts will be catch up ones from what I've done over the past couple of weeks. They might seem a bit out of date or written as if it was before we went out (because they were started before), yet … Continue reading Expectations
Firstly I wanted to say that I was totally blown away by your response to my post on "the unspeakable problem". Far from being unspeakable there was such an outpouring that I was totally in awe of the courage of people out there who, like me are dealing with incontinence everyday/all the time 24/7. People … Continue reading Summer days out!!
Today was D-Day, my first appointment with my new doctor. I can't say that I was looking forward to it. My brain was in total overdrive and the two nightmares I had last night definitely didn't help. I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??
I've suffered with migraines since I was approximately 4 years old, but you try telling the schools nurse (we had school nurses when I was at school) that you have a migraine and that you can't do anything about them when you're that age. I heard that I was making them up, or it was … Continue reading Migraines and Mishaps
I have again had real problems with trying to think about what to write. I have been aware that while I really wanted to connect to people about my disability and issues that I and other disabled people have, I also wanted to review products and share useful things that I have and use to … Continue reading Naps are important!!
I've had a yet another boring day today so thought it seemed the perfect time to share about how isolating disability can be. Since becoming disabled my social circle has become very small anyways, not necessarily through anyone's fault but more because going out full stop is rarer. Before my disability I was training to … Continue reading Boring days and isolation!!
I've been having a bad few days so haven't been up to posting. Today's post I decided to write about my carers. I'm lucky in a number of ways but one of those is my wonderful carers. I've deteriorated so much I have 2 different ones. I have my wonderful mum, who I love spending … Continue reading Carers and phone calls