Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

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Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Today was D-Day, my first appointment with my new doctor.  I can't say that I was looking forward to it.  My brain was in total overdrive and the two nightmares I had last night definitely didn't help.  I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Why making fun of me, for falling asleep, hurts so much….

You might think it's funny when I fall asleep at 5pm or throughout the day, you think it's hilarious that I can't stay awake through a t.v. programme or a film but let me explain why that happens. Let me explain why it hurts when you think it's so funny that I am always tired. … Continue reading Why making fun of me, for falling asleep, hurts so much….

Let’s guess who my GP is!?!

Let's talk doctors. When you are a "normal" person it is nice to have a good relationship with your GP, however when you have a long term condition it is essential. Your GP is often the only one willing to send you to see specialists and to understand your everyday struggles. I have been very … Continue reading Let’s guess who my GP is!?!

Not your average mother daughter outing!!

A post about my blood test traumas so please don't read if you don't like reading about that!!! So a few weeks ago I had a batch of blood tests. Not too bad for most people, but our local surgery has recently stopped taking blood and the phlebotomists there have been the only ones, for … Continue reading Not your average mother daughter outing!!