A few days ago I was talking to a friend of mine (who also blogs and can be found at https://danonwheels.wordpress.com/) and we got onto the subject of doctors, I had had a particularly unhelpful doctors appointment where 95% of my issues and concerns had been dismissed as something that she couldn't do anything about, … Continue reading Why being called a medical “enigma” or “puzzle” is not helpful
Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!
No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
A friend of mine noted on her Facebook page today that two friends had asked her about how she was feeling. She gave two different answers because of their relationship to her and the conditions they had. To one friend she had replied that she was "fine" and to another who shared her condition she … Continue reading The many faces of chronic illness!
One thing that a lot of non-disabled people don't understand is the sheer panic, annoyance, anger, inconvenience and, or upset moving a disabled person's mobility aid can cause. It's almost difficult to explain just how we feel when it happens because you have very little to compare it to, but what it pretty much equates … Continue reading Moving my legs!!
This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!
This week has yet again been a very boring week. My dad has been off ill which has meant that mum and I have been stuck in a lot of the time as she didn't want to leave him for too long. However this has had two rather annoying consequences for me, one I'm bored … Continue reading Boring weeks and Sensory Overload part 2!!
January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!