.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!! The reason that it is late is because last … Continue reading Appointments again, and when minor victories feel like winning the lottery!!
As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit. I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!
I've had a long week again. 2 hospital appointments and getting ready for my mum to go away (my sister and my niece will be staying with me to help me), and so I've been struggling again in more ways than one. The problem has been my brain fog again which has been awful. I've … Continue reading Brain Fog strikes again!!
Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
Sunday saw me heading down to Dunsfold aerodrome for Wings and Wheels. As if explained before I'd not so much been looking forward to it, rather worrying but thankfully nothing beforehand went wrong so mobility scooter dismantled and packed and emergency kit supplemented with 2 bottles of icy water and a cold water spray (and … Continue reading Wings and Wheels
I never thought that at the age of 38 without a baby that I'd be packing a bag of essentials to carry around with me. Unfortunately with the "unspeakable problem" screaming so loudly at the moment I've had to create my emergency kit so that whenever I go out for more than a few hours … Continue reading My emergency kit bag!!
I know it's not something that most people talk about and there is a reason for that but today I want to talk incontinence. It's not talked about because it is embarrassing, it's not interesting and it's not something that you want most people to know about. It's not something that you can just chat … Continue reading The unspeakable problem!!
Yet again two days ago saw me off to the hospital with mum for yet more blood tests!! We have researched and found out the quieter times because of my sensory problems and problems with crowds so late morning saw mum and me at the local hospital for my blood tests. Seems however that most … Continue reading Blood test deja vous!!
Today was D-Day, my first appointment with my new doctor. I can't say that I was looking forward to it. My brain was in total overdrive and the two nightmares I had last night definitely didn't help. I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??
This week I have had two hospital appointments, both at our local hospital which has meant that I have been able to get to them in my mobility scooter. It's meant though that for the rest of the week I've not really done anything, I've not been able to go out in between because for … Continue reading Appointments, pacing and “The Unmentionable problem!!!”