EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!

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Awareness month and What you need to know about my EDS part 2!!

I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!

A Chewy Habit!

With sensory processing disorder comes the need to fiddle, chew, or do other stimming activities. As an adult this can be hard as I will explain in another post, but I recently came across a company called "chewigem" who have come up with some wonderful products to help with some of these. I was lucky … Continue reading A Chewy Habit!

The many faces of chronic illness!

A friend of mine noted on her Facebook page today that two friends had asked her about how she was feeling. She gave two different answers because of their relationship to her and the conditions they had. To one friend she had replied that she was "fine" and to another who shared her condition she … Continue reading The many faces of chronic illness!

Yet more appointments and the funny places your mind goes in the middle of the night!!

This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!

Boring weeks and Sensory Overload part 2!!

This week has yet again been a very boring week. My dad has been off ill which has meant that mum and I have been stuck in a lot of the time as she didn't want to leave him for too long. However this has had two rather annoying consequences for me, one I'm bored … Continue reading Boring weeks and Sensory Overload part 2!!

Catheter update and a few crafty want to do’s for this year!!

OK so I know the title probably isn't the biggest draw, and it's rather long!!  As you know,  from my new years posts, I don't make resolutions or set goals so that couldn't be the  title!! I thought however that as I've got a number of crafts I'd like to either master, try or continue … Continue reading Catheter update and a few crafty want to do’s for this year!!

New year’s eve

I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve

Sensory Overload!

I've started the following post about half a dozen times.  It's been easy to write in the sense that the words have come easily but, as you will see, actually writing the post has been hard. I've lost over 3 copies and had interruptions and problems, with family being here, finding time to myself.  So … Continue reading Sensory Overload!

Waiting is torture!!

This week' blog post is going to hopefully not be the only one!!  I've got a few Christmas posts I'd like to do too, but this first one is about the catheter!! It has also been unfortunately waiting for a week now because I've been struggling to keep on top of everything this week. I … Continue reading Waiting is torture!!