A few days ago I was talking to a friend of mine (who also blogs and can be found at https://danonwheels.wordpress.com/) and we got onto the subject of doctors, I had had a particularly unhelpful doctors appointment where 95% of my issues and concerns had been dismissed as something that she couldn't do anything about, … Continue reading Why being called a medical “enigma” or “puzzle” is not helpful
This post is one of the 22 I've had sitting ready to finish. I wanted to finish it now, mainly because it's happening again, I'm unable to go out as an issue with my mobility scooter is isolating me again and although last weekend I had a great trip to London (a birthday treat that … Continue reading When isolation becomes the norm…
As you may have noticed I've been absent for a few months again now. I've been struggling with both what to write, and with my own health and mental health. I'm hoping that I can start again fresh now it's the new year, I will rewrite some of the posts I've had sitting waiting and … Continue reading Why we need to change our perception of Autism
Yet again it's been a long time between blog posts, yet again I feel I have to apologise. I've been getting a lot of writers block recently and my mental health has taken a bit of a nose dive, these two things have clubbed together to make me feel very disillusioned with blogging. I've felt … Continue reading How a thoughtless act can ruin a trip out
Yes I started this post months ago and so yet again it seems a bit odd, but rather than re-write the whole thing I thought it best to just add to it. Unfortunately I added to it at a couple of points and then ended up not being able to finish!! I hope it's not … Continue reading When the crafty bug hits………again!!
Firstly this post has been written for a few weeks now, just waiting for photos which I took the other day. Unfortunately my brain fog, summer holidays and severe writers block has left me with no posts to update you with!! I'm hoping that I might be able to remedy this over the next few … Continue reading Meet my new mascot & the life of a grown up fiddler!!
Firstly I yet again have to start with an apology for the lack of posts. I had a couple of posts ready to go but without photo's before I went into hospital, but didn't want to just find photo's to use I wanted to have taken them myself (the found photos weren't quite right for … Continue reading When your body is shouting stop, what would you do?
Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!
I today made a telephone call! Ok so to a lot of people this is not a big deal but to me these cause a huge panic. It starts when I decide I need to make the call, usually this is a last minute decision because if I have time to think about it for … Continue reading A plea for all
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!