Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
One thing that a lot of non-disabled people don't understand is the sheer panic, annoyance, anger, inconvenience and, or upset moving a disabled person's mobility aid can cause. It's almost difficult to explain just how we feel when it happens because you have very little to compare it to, but what it pretty much equates … Continue reading Moving my legs!!
January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!
As predicted because I have now stopped and we have got back to normality, I have crashed. My fatigue levels are so unbelievably high, made worse by the weather (I think) because it is so dark and grey all the time and so all I want to do is fall asleep. The catheter continues to … Continue reading Another year, same old problems!!