Floored!!

This last week I have been finding very hard to cope with. It's partly been the 3 different appointments I've had, it's partly been the weather but what has totally floored me has been the cold my gorgeous niece shared with me!! You'd have thought that with all the conditions I have and the fact … Continue reading Floored!!

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Little visitor and looking after mum!!!

Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

Wings and Wheels

Sunday saw me heading down to Dunsfold aerodrome for Wings and Wheels. As if explained before I'd not so much been looking forward to it, rather worrying but thankfully nothing beforehand went wrong so mobility scooter dismantled and packed and emergency kit supplemented with 2 bottles of icy water and a cold water spray (and … Continue reading Wings and Wheels

My emergency kit bag!!

I never thought that at the age of 38 without a baby that I'd be packing a bag of essentials to carry around with me. Unfortunately with the "unspeakable problem" screaming so loudly at the moment I've had to create my emergency kit so that whenever I go out for more than a few hours … Continue reading My emergency kit bag!!

Realisations 

I have been cooking up a post which seems to be taking me forever to write!! I thought that while I was doing that though I'd still write a post as while we were out yesterday I came to a few realisations, well ok not so much realisations more recollections of these thoughts but whatever … Continue reading Realisations 

Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Today was D-Day, my first appointment with my new doctor.  I can't say that I was looking forward to it.  My brain was in total overdrive and the two nightmares I had last night definitely didn't help.  I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Migraines and Mishaps

I've suffered with migraines since I was approximately 4 years old,  but you try telling the schools nurse (we had school nurses when I was at school) that you have a migraine and that you can't do anything about them when you're that age.  I heard that I was making them up, or it was … Continue reading Migraines and Mishaps

Naps are important!!

I have again had real problems with trying to think about what to write.  I have been aware that while I really wanted to connect to people about my disability and issues that I and other disabled people have, I also wanted to review products and share useful things that I have and use to … Continue reading Naps are important!!

An unusual request to put the crafty back into the CraftyInsomniac

Well today I've been getting back to being a bit more crafty, it's always hard for me now to admit that I cannot do as much crafting as I would like to but with a lot of adaptation I can still do some things.  Cake baking and decorating is one of my loves, I love … Continue reading An unusual request to put the crafty back into the CraftyInsomniac