.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!! The reason that it is late is because last … Continue reading Appointments again, and when minor victories feel like winning the lottery!!
I seem to have totally lost the ability to what most people would call a "normal conversation" I don't know whether this was a gradual process or it has just come about but I don't seem to be able to speak to people anymore!! Let me explain. I met an old friend in town … Continue reading Normal conversation??
I've had a long week again. 2 hospital appointments and getting ready for my mum to go away (my sister and my niece will be staying with me to help me), and so I've been struggling again in more ways than one. The problem has been my brain fog again which has been awful. I've … Continue reading Brain Fog strikes again!!
Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!
Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
Sunday saw me heading down to Dunsfold aerodrome for Wings and Wheels. As if explained before I'd not so much been looking forward to it, rather worrying but thankfully nothing beforehand went wrong so mobility scooter dismantled and packed and emergency kit supplemented with 2 bottles of icy water and a cold water spray (and … Continue reading Wings and Wheels
As I've not had so much time to write and post recently my next few posts will be catch up ones from what I've done over the past couple of weeks. They might seem a bit out of date or written as if it was before we went out (because they were started before), yet … Continue reading Expectations
I never thought that at the age of 38 without a baby that I'd be packing a bag of essentials to carry around with me. Unfortunately with the "unspeakable problem" screaming so loudly at the moment I've had to create my emergency kit so that whenever I go out for more than a few hours … Continue reading My emergency kit bag!!
Yet again two days ago saw me off to the hospital with mum for yet more blood tests!! We have researched and found out the quieter times because of my sensory problems and problems with crowds so late morning saw mum and me at the local hospital for my blood tests. Seems however that most … Continue reading Blood test deja vous!!
Today was D-Day, my first appointment with my new doctor. I can't say that I was looking forward to it. My brain was in total overdrive and the two nightmares I had last night definitely didn't help. I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??