Firstly this post has been written for a few weeks now, just waiting for photos which I took the other day. Unfortunately my brain fog, summer holidays and severe writers block has left me with no posts to update you with!! I'm hoping that I might be able to remedy this over the next few … Continue reading Meet my new mascot & the life of a grown up fiddler!!
Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!
I today made a telephone call! Ok so to a lot of people this is not a big deal but to me these cause a huge panic. It starts when I decide I need to make the call, usually this is a last minute decision because if I have time to think about it for … Continue reading A plea for all
No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
With sensory processing disorder comes the need to fiddle, chew, or do other stimming activities. As an adult this can be hard as I will explain in another post, but I recently came across a company called "chewigem" who have come up with some wonderful products to help with some of these. I was lucky … Continue reading A Chewy Habit!
Last night I went up to bed. I walked into my room, and despite my mum having spent hours that morning tidying and cleaning my room the first thing I noticed was that my teddy bears had been moved. I looked around, where were they? The first words that came out of my mouth, before … Continue reading I sometimes wish my brain worked like other people’s!!
A friend of mine noted on her Facebook page today that two friends had asked her about how she was feeling. She gave two different answers because of their relationship to her and the conditions they had. To one friend she had replied that she was "fine" and to another who shared her condition she … Continue reading The many faces of chronic illness!
This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!