Appointments again, and when minor victories feel like winning the lottery!!

.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!!  The reason that it is late is because last … Continue reading Appointments again, and when minor victories feel like winning the lottery!!

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Normal conversation??

  I seem to have totally lost the ability to what most people would call a "normal conversation" I don't know whether this was a gradual process or it has just come about but I don't seem to be able to speak to people anymore!!  Let me explain. I met an old friend in town … Continue reading Normal conversation??

Why I Still Send Christmas Cards!!

Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time.  My only other contact can be through a screen with either people I've never met, or rarely meet.  It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!

My insomnia and sleep kit!!

As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit.  I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!

Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Today was D-Day, my first appointment with my new doctor.  I can't say that I was looking forward to it.  My brain was in total overdrive and the two nightmares I had last night definitely didn't help.  I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Wet days and mobility scooters!! 

When you have a disability you know that things are often not that easy. Almost everything had to be adapted to fit.  One thing I never even considered would be an issue though is rain covers, I mean they have rain covers for prams so why not wheelchairs right (OK so I don't particularly want … Continue reading Wet days and mobility scooters!! 

Carers and phone calls

I've been having a bad few days so haven't been up to posting. Today's post I decided to write about my carers. I'm lucky in a number of ways but one of those is my wonderful carers. I've deteriorated so much I have 2 different ones. I have my wonderful mum, who I love spending … Continue reading Carers and phone calls