Urology awareness and a very frustrating morning!!

I found out yesterday  (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!

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Little visitor and looking after mum!!!

Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

Mismatches!!!

One more of the many, many downsides of "the unspeakable problem" (incontinence, see other posts for some of the other problems) for me is the many clothes changes I'm going through at the moment!! If I was rich I have to admit that this would be a big up-side because it would be the perfect … Continue reading Mismatches!!!

Surveys surveys surveys!!

When I became disabled I was training for a teaching degree, which after postponements and an awful lot of trials and tribulations I achieved.  However since that time my health has become steadily worse and so I've been unable to work.  Life on benefits is far from what the media can make it out to … Continue reading Surveys surveys surveys!!

An unusual request to put the crafty back into the CraftyInsomniac

Well today I've been getting back to being a bit more crafty, it's always hard for me now to admit that I cannot do as much crafting as I would like to but with a lot of adaptation I can still do some things.  Cake baking and decorating is one of my loves, I love … Continue reading An unusual request to put the crafty back into the CraftyInsomniac

Appointments, pacing and “The Unmentionable problem!!!”

This week I have had two hospital appointments, both at our local hospital which has meant that I have been able to get to them in my mobility scooter.  It's meant though that for the rest of the week I've not really done anything, I've not been able to go out in between because for … Continue reading Appointments, pacing and “The Unmentionable problem!!!”

Why making fun of me, for falling asleep, hurts so much….

You might think it's funny when I fall asleep at 5pm or throughout the day, you think it's hilarious that I can't stay awake through a t.v. programme or a film but let me explain why that happens. Let me explain why it hurts when you think it's so funny that I am always tired. … Continue reading Why making fun of me, for falling asleep, hurts so much….

Boring days and isolation!!

I've had a yet another boring day today so thought it seemed the perfect time to share about how isolating disability can be. Since becoming disabled my social circle has become very small anyways, not necessarily through anyone's fault but more because going out full stop is rarer. Before my disability I was training to … Continue reading Boring days and isolation!!

Carers and phone calls

I've been having a bad few days so haven't been up to posting. Today's post I decided to write about my carers. I'm lucky in a number of ways but one of those is my wonderful carers. I've deteriorated so much I have 2 different ones. I have my wonderful mum, who I love spending … Continue reading Carers and phone calls