May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
Last night I went up to bed. I walked into my room, and despite my mum having spent hours that morning tidying and cleaning my room the first thing I noticed was that my teddy bears had been moved. I looked around, where were they? The first words that came out of my mouth, before … Continue reading I sometimes wish my brain worked like other people’s!!
January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!
I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve
This week' blog post is going to hopefully not be the only one!! I've got a few Christmas posts I'd like to do too, but this first one is about the catheter!! It has also been unfortunately waiting for a week now because I've been struggling to keep on top of everything this week. I … Continue reading Waiting is torture!!
Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time. My only other contact can be through a screen with either people I've never met, or rarely meet. It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!
As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit. I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!
I've had a long week again. 2 hospital appointments and getting ready for my mum to go away (my sister and my niece will be staying with me to help me), and so I've been struggling again in more ways than one. The problem has been my brain fog again which has been awful. I've … Continue reading Brain Fog strikes again!!
I found out yesterday (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!