January Blues!

January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!


New year’s eve

I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve

Waiting is torture!!

This week' blog post is going to hopefully not be the only one!!  I've got a few Christmas posts I'd like to do too, but this first one is about the catheter!! It has also been unfortunately waiting for a week now because I've been struggling to keep on top of everything this week. I … Continue reading Waiting is torture!!

Why I Still Send Christmas Cards!!

Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time.  My only other contact can be through a screen with either people I've never met, or rarely meet.  It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!

My insomnia and sleep kit!!

As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit.  I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!

Brain Fog strikes again!!

I've had a long week again. 2 hospital appointments and getting ready for my mum to go away (my sister and my niece will be staying with me to help me), and so I've been struggling again in more ways than one. The problem has been my brain fog again which has been awful. I've … Continue reading Brain Fog strikes again!!

Urology awareness and a very frustrating morning!!

I found out yesterday  (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!

Little visitor and looking after mum!!!

Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 


One more of the many, many downsides of "the unspeakable problem" (incontinence, see other posts for some of the other problems) for me is the many clothes changes I'm going through at the moment!! If I was rich I have to admit that this would be a big up-side because it would be the perfect … Continue reading Mismatches!!!