Floored!!

This last week I have been finding very hard to cope with. It's partly been the 3 different appointments I've had, it's partly been the weather but what has totally floored me has been the cold my gorgeous niece shared with me!! You'd have thought that with all the conditions I have and the fact … Continue reading Floored!!

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Urology awareness and a very frustrating morning!!

I found out yesterday  (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

My emergency kit bag!!

I never thought that at the age of 38 without a baby that I'd be packing a bag of essentials to carry around with me. Unfortunately with the "unspeakable problem" screaming so loudly at the moment I've had to create my emergency kit so that whenever I go out for more than a few hours … Continue reading My emergency kit bag!!

Realisations 

I have been cooking up a post which seems to be taking me forever to write!! I thought that while I was doing that though I'd still write a post as while we were out yesterday I came to a few realisations, well ok not so much realisations more recollections of these thoughts but whatever … Continue reading Realisations 

Wow a fairly successful family outing!!

Yesterday, wanting to make the most of the nice weather, we decided to go out again as a family.  This time we had settled on somewhere we have been a number of times before, Pulborough Brooks which is an RSPB run place, this is usually a good bet because we know what I can and … Continue reading Wow a fairly successful family outing!!

Summer days out!!

Firstly I wanted to say that I was totally blown away by your response to my post on "the unspeakable problem". Far from being unspeakable there was such an outpouring that I was totally in awe of the courage of people out there who, like me are dealing with incontinence everyday/all the time 24/7. People … Continue reading Summer days out!!

Blood test deja vous!!

Yet again two days ago saw me off to the hospital with mum for yet more blood tests!! We have researched and found out the quieter times because of my sensory problems and problems with crowds so late morning saw mum and me at the local hospital for my blood tests. Seems however that most … Continue reading Blood test deja vous!!

Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

Today was D-Day, my first appointment with my new doctor.  I can't say that I was looking forward to it.  My brain was in total overdrive and the two nightmares I had last night definitely didn't help.  I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??

My first ever disabled dream.

So the other night I had my first ever (or that I can remember) disabled dream.  I think that having been able bodied before and having not used a wheelchair for a lot of my life I have always dreamt that I was still able to walk about.  My dreams seemed to be an escape … Continue reading My first ever disabled dream.