Medical overload and operation stress!

Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!

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Catheter woes and what is a supra-pubic catheter??!!

No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!

Awareness month and What you need to know about my EDS part 2!!

I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!

Yet more appointments and the funny places your mind goes in the middle of the night!!

This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!

January Blues!

January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!

Another year, same old problems!!

As predicted because I have now stopped and we have got back to normality, I have crashed.  My fatigue levels are so unbelievably high, made worse by the weather (I think) because it is so dark and grey all the time and so all I want to do is fall asleep.  The catheter continues to … Continue reading Another year, same old problems!!

Catheter update and a few crafty want to do’s for this year!!

OK so I know the title probably isn't the biggest draw, and it's rather long!!  As you know,  from my new years posts, I don't make resolutions or set goals so that couldn't be the  title!! I thought however that as I've got a number of crafts I'd like to either master, try or continue … Continue reading Catheter update and a few crafty want to do’s for this year!!

New year’s eve

I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve

Merry Blogmas!!

OK so as far as Christmas is concerned my blog has been slightly absent!  I have written about my Christmas card tradition, and hinted at other things but I haven't actually done anything really Christmassy.  Now this is in part because I've had a huge problem getting into the Christmas spirit. I did my shopping, … Continue reading Merry Blogmas!!

Waiting is torture!!

This week' blog post is going to hopefully not be the only one!!  I've got a few Christmas posts I'd like to do too, but this first one is about the catheter!! It has also been unfortunately waiting for a week now because I've been struggling to keep on top of everything this week. I … Continue reading Waiting is torture!!