When the crafty bug hits………again!!

Yes I started this post months ago and so yet again it seems a bit odd, but rather than re-write the whole thing I thought it best to just add to it. Unfortunately I added to it at a couple of points and then ended up not being able to finish!!  I hope it's not … Continue reading When the crafty bug hits………again!!

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When your body is shouting stop, what would you do?

Firstly I yet again have to start with an apology for the lack of posts. I had a couple of posts ready to go but without photo's before I went into hospital, but didn't want to just find photo's to use I wanted to have taken them myself (the found photos weren't quite right for … Continue reading When your body is shouting stop, what would you do?

EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!

Awareness month and What you need to know about my EDS part 2!!

I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!

Catheter update and a few crafty want to do’s for this year!!

OK so I know the title probably isn't the biggest draw, and it's rather long!!  As you know,  from my new years posts, I don't make resolutions or set goals so that couldn't be the  title!! I thought however that as I've got a number of crafts I'd like to either master, try or continue … Continue reading Catheter update and a few crafty want to do’s for this year!!

New year’s eve

I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve

Appointments again, and when minor victories feel like winning the lottery!!

.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!!  The reason that it is late is because last … Continue reading Appointments again, and when minor victories feel like winning the lottery!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment