One thing that a lot of non-disabled people don't understand is the sheer panic, annoyance, anger, inconvenience and, or upset moving a disabled person's mobility aid can cause. It's almost difficult to explain just how we feel when it happens because you have very little to compare it to, but what it pretty much equates … Continue reading Moving my legs!!
I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve
As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit. I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!
I've had a long week again. 2 hospital appointments and getting ready for my mum to go away (my sister and my niece will be staying with me to help me), and so I've been struggling again in more ways than one. The problem has been my brain fog again which has been awful. I've … Continue reading Brain Fog strikes again!!
Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
I have been cooking up a post which seems to be taking me forever to write!! I thought that while I was doing that though I'd still write a post as while we were out yesterday I came to a few realisations, well ok not so much realisations more recollections of these thoughts but whatever … Continue reading Realisations
Today was D-Day, my first appointment with my new doctor. I can't say that I was looking forward to it. My brain was in total overdrive and the two nightmares I had last night definitely didn't help. I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??
So the other night I had my first ever (or that I can remember) disabled dream. I think that having been able bodied before and having not used a wheelchair for a lot of my life I have always dreamt that I was still able to walk about. My dreams seemed to be an escape … Continue reading My first ever disabled dream.
You might think it's funny when I fall asleep at 5pm or throughout the day, you think it's hilarious that I can't stay awake through a t.v. programme or a film but let me explain why that happens. Let me explain why it hurts when you think it's so funny that I am always tired. … Continue reading Why making fun of me, for falling asleep, hurts so much….
Ok ok I know too many posts, but I really want to make a go of this and need to be seen to do that!!! My first purchase arrived today so I wanted to share it with you. Let's talk shoes. Every girls dream right??? Not mine, I'm the first one to admit that I've … Continue reading I know you’re going to get bored of me but I wanted to share a purchase with you!!!