Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
I have been cooking up a post which seems to be taking me forever to write!! I thought that while I was doing that though I'd still write a post as while we were out yesterday I came to a few realisations, well ok not so much realisations more recollections of these thoughts but whatever … Continue reading Realisations
Today was D-Day, my first appointment with my new doctor. I can't say that I was looking forward to it. My brain was in total overdrive and the two nightmares I had last night definitely didn't help. I had written my list, an essential piece of my doctors appointment equipment for without it I am … Continue reading Phew, that wasn’t as bad as expected!! But has anyone seen my knuckle??
So the other night I had my first ever (or that I can remember) disabled dream. I think that having been able bodied before and having not used a wheelchair for a lot of my life I have always dreamt that I was still able to walk about. My dreams seemed to be an escape … Continue reading My first ever disabled dream.
You might think it's funny when I fall asleep at 5pm or throughout the day, you think it's hilarious that I can't stay awake through a t.v. programme or a film but let me explain why that happens. Let me explain why it hurts when you think it's so funny that I am always tired. … Continue reading Why making fun of me, for falling asleep, hurts so much….
Ok ok I know too many posts, but I really want to make a go of this and need to be seen to do that!!! My first purchase arrived today so I wanted to share it with you. Let's talk shoes. Every girls dream right??? Not mine, I'm the first one to admit that I've … Continue reading I know you’re going to get bored of me but I wanted to share a purchase with you!!!
So it struck me again this afternoon what a mass of contradictions I really am!! I was sat doing a jigsaw puzzle (another one of the things that eds has curtailed, but more about that later!!) watching first the end of Le Mans 24 hour race and following that one of the top gear specials!!! … Continue reading A mass of contradictions!!!
I couldn't decide the topic for my post today, yesterday I'd gone through the internal battle I have when I buy anything so thought I'd share that but when I came to start to write an overwhelming force took hold and so today I'm going to write about that instead. I shall save my purchases … Continue reading Feeling hot!!!
When I started my blog I hoped to share fun things and help explain some of my symptoms and review places I go and equipment I have to hopefully offer some insights into illness and disability. However today was a really bad day for me. I've been struggling for a while but today made me … Continue reading A bad day.