This post is one of the 22 I've had sitting ready to finish. I wanted to finish it now, mainly because it's happening again, I'm unable to go out as an issue with my mobility scooter is isolating me again and although last weekend I had a great trip to London (a birthday treat that … Continue reading When isolation becomes the norm…
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!
I've started the following post about half a dozen times. It's been easy to write in the sense that the words have come easily but, as you will see, actually writing the post has been hard. I've lost over 3 copies and had interruptions and problems, with family being here, finding time to myself. So … Continue reading Sensory Overload!
I seem to have totally lost the ability to what most people would call a "normal conversation" I don't know whether this was a gradual process or it has just come about but I don't seem to be able to speak to people anymore!! Let me explain. I met an old friend in town … Continue reading Normal conversation??
Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time. My only other contact can be through a screen with either people I've never met, or rarely meet. It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!
Well today I've been getting back to being a bit more crafty, it's always hard for me now to admit that I cannot do as much crafting as I would like to but with a lot of adaptation I can still do some things. Cake baking and decorating is one of my loves, I love … Continue reading An unusual request to put the crafty back into the CraftyInsomniac
You might think it's funny when I fall asleep at 5pm or throughout the day, you think it's hilarious that I can't stay awake through a t.v. programme or a film but let me explain why that happens. Let me explain why it hurts when you think it's so funny that I am always tired. … Continue reading Why making fun of me, for falling asleep, hurts so much….
I've had a yet another boring day today so thought it seemed the perfect time to share about how isolating disability can be. Since becoming disabled my social circle has become very small anyways, not necessarily through anyone's fault but more because going out full stop is rarer. Before my disability I was training to … Continue reading Boring days and isolation!!