EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!

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Awareness month and What you need to know about my EDS part 2!!

I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!

I sometimes wish my brain worked like other people’s!!

Last night I went up to bed. I walked into my room, and despite my mum having spent hours that morning tidying and cleaning my room the first thing I noticed was that my teddy bears had been moved. I looked around, where were they? The first words that came out of my mouth, before … Continue reading I sometimes wish my brain worked like other people’s!!

The many faces of chronic illness!

A friend of mine noted on her Facebook page today that two friends had asked her about how she was feeling. She gave two different answers because of their relationship to her and the conditions they had. To one friend she had replied that she was "fine" and to another who shared her condition she … Continue reading The many faces of chronic illness!

Brain Fog and erm…

I open my book and stare at the pages, I can't remember what I'm supposed to do, how do I read? What are these things on the pages?...............This is Brain Fog. I start a sentence, a few words in and my mind goes blank, what am I doing? What am I saying? Where was I … Continue reading Brain Fog and erm…

Yet more appointments and the funny places your mind goes in the middle of the night!!

This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!

Boring weeks and Sensory Overload part 2!!

This week has yet again been a very boring week. My dad has been off ill which has meant that mum and I have been stuck in a lot of the time as she didn't want to leave him for too long. However this has had two rather annoying consequences for me, one I'm bored … Continue reading Boring weeks and Sensory Overload part 2!!

January Blues!

January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!

Another year, same old problems!!

As predicted because I have now stopped and we have got back to normality, I have crashed.  My fatigue levels are so unbelievably high, made worse by the weather (I think) because it is so dark and grey all the time and so all I want to do is fall asleep.  The catheter continues to … Continue reading Another year, same old problems!!