Appointments again, and when minor victories feel like winning the lottery!!

.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!!  The reason that it is late is because last … Continue reading Appointments again, and when minor victories feel like winning the lottery!!

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Normal conversation??

  I seem to have totally lost the ability to what most people would call a "normal conversation" I don't know whether this was a gradual process or it has just come about but I don't seem to be able to speak to people anymore!!  Let me explain. I met an old friend in town … Continue reading Normal conversation??

Why I Still Send Christmas Cards!!

Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time.  My only other contact can be through a screen with either people I've never met, or rarely meet.  It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!

My insomnia and sleep kit!!

As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit.  I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!

I’m complicated 

We were playing a game with my niece yesterday and I realised that I'm just a very complicated person. I know that I'm definitely not the only one that there are many others who are, but it's not just medically that I'm so complicated in!! Medically I know I'm complicated, as is anyone with a … Continue reading I’m complicated 

Floored!!

This last week I have been finding very hard to cope with. It's partly been the 3 different appointments I've had, it's partly been the weather but what has totally floored me has been the cold my gorgeous niece shared with me!! You'd have thought that with all the conditions I have and the fact … Continue reading Floored!!

Little visitor and looking after mum!!!

Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

Surveys surveys surveys!!

When I became disabled I was training for a teaching degree, which after postponements and an awful lot of trials and tribulations I achieved.  However since that time my health has become steadily worse and so I've been unable to work.  Life on benefits is far from what the media can make it out to … Continue reading Surveys surveys surveys!!

My first ever disabled dream.

So the other night I had my first ever (or that I can remember) disabled dream.  I think that having been able bodied before and having not used a wheelchair for a lot of my life I have always dreamt that I was still able to walk about.  My dreams seemed to be an escape … Continue reading My first ever disabled dream.