Floored!!

This last week I have been finding very hard to cope with. It's partly been the 3 different appointments I've had, it's partly been the weather but what has totally floored me has been the cold my gorgeous niece shared with me!! You'd have thought that with all the conditions I have and the fact … Continue reading Floored!!

Advertisements

Little visitor and looking after mum!!!

Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!

Doctors second appointment 

Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment 

Surveys surveys surveys!!

When I became disabled I was training for a teaching degree, which after postponements and an awful lot of trials and tribulations I achieved.  However since that time my health has become steadily worse and so I've been unable to work.  Life on benefits is far from what the media can make it out to … Continue reading Surveys surveys surveys!!

My first ever disabled dream.

So the other night I had my first ever (or that I can remember) disabled dream.  I think that having been able bodied before and having not used a wheelchair for a lot of my life I have always dreamt that I was still able to walk about.  My dreams seemed to be an escape … Continue reading My first ever disabled dream.

Blood pooling, and pregnancy looking swellings .

On the whole I avoid contact with mirrors and cameras, they are evil things that show up the slightest of floors. I even only look at the bit I'm doing in a mirror on those rare occasions I wear make-up, I've perfected the just looking at an eye or my lips and not seeing my … Continue reading Blood pooling, and pregnancy looking swellings .

Why making fun of me, for falling asleep, hurts so much….

You might think it's funny when I fall asleep at 5pm or throughout the day, you think it's hilarious that I can't stay awake through a t.v. programme or a film but let me explain why that happens. Let me explain why it hurts when you think it's so funny that I am always tired. … Continue reading Why making fun of me, for falling asleep, hurts so much….

Boring days and isolation!!

I've had a yet another boring day today so thought it seemed the perfect time to share about how isolating disability can be. Since becoming disabled my social circle has become very small anyways, not necessarily through anyone's fault but more because going out full stop is rarer. Before my disability I was training to … Continue reading Boring days and isolation!!

Carers and phone calls

I've been having a bad few days so haven't been up to posting. Today's post I decided to write about my carers. I'm lucky in a number of ways but one of those is my wonderful carers. I've deteriorated so much I have 2 different ones. I have my wonderful mum, who I love spending … Continue reading Carers and phone calls

When you realise your scooter isn’t even as fast as walking!!!

So yesterday was a bad day. Seems the pressure and thunder affects me more than I thought and whilst in Waitrose I almost blacked out and also was feeling terribly seasick with my POTS. However it's the funny ish moment that happened after that I'd like to share with you today!!! Mum and I were … Continue reading When you realise your scooter isn’t even as fast as walking!!!