Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!
I today made a telephone call! Ok so to a lot of people this is not a big deal but to me these cause a huge panic. It starts when I decide I need to make the call, usually this is a last minute decision because if I have time to think about it for … Continue reading A plea for all
No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!
As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit. I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was … Continue reading My insomnia and sleep kit!!
Schools back but for me it's now a long road back to normality after the holiday!! I haven't really been able to (or ever been any good at) pacing, so my body is definitely rebelling. I'm aching all over with the exhaustion and my brain fog is so bad I'm not actually sure how I'm … Continue reading Doctors second appointment
Well today I've been getting back to being a bit more crafty, it's always hard for me now to admit that I cannot do as much crafting as I would like to but with a lot of adaptation I can still do some things. Cake baking and decorating is one of my loves, I love … Continue reading An unusual request to put the crafty back into the CraftyInsomniac
I couldn't decide the topic for my post today, yesterday I'd gone through the internal battle I have when I buy anything so thought I'd share that but when I came to start to write an overwhelming force took hold and so today I'm going to write about that instead. I shall save my purchases … Continue reading Feeling hot!!!