How a thoughtless act can ruin a trip out

Yet again it's been a long time between blog posts, yet again I feel I have to apologise. I've been getting a lot of writers block recently and my mental health has taken a bit of a nose dive, these two things have clubbed together to make me feel very disillusioned with blogging. I've felt … Continue reading How a thoughtless act can ruin a trip out

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When the crafty bug hits………again!!

Yes I started this post months ago and so yet again it seems a bit odd, but rather than re-write the whole thing I thought it best to just add to it. Unfortunately I added to it at a couple of points and then ended up not being able to finish!!  I hope it's not … Continue reading When the crafty bug hits………again!!

Meet my new mascot & the life of a grown up fiddler!!

Firstly this post has been written for a few weeks now, just waiting for photos which I took the other day.  Unfortunately my brain fog, summer holidays and severe writers block has left me with no posts to update you with!!  I'm hoping that I might be able to remedy this over the next few … Continue reading Meet my new mascot & the life of a grown up fiddler!!

When your body is shouting stop, what would you do?

Firstly I yet again have to start with an apology for the lack of posts. I had a couple of posts ready to go but without photo's before I went into hospital, but didn't want to just find photo's to use I wanted to have taken them myself (the found photos weren't quite right for … Continue reading When your body is shouting stop, what would you do?

Medical overload and operation stress!

Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!

A plea for all

I today made a telephone call! Ok so to a lot of people this is not a big deal but to me these cause a huge panic. It starts when I decide I need to make the call, usually this is a last minute decision because if I have time to think about it for … Continue reading A plea for all

Catheter woes and what is a supra-pubic catheter??!!

No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!

EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!

Awareness month and What you need to know about my EDS part 2!!

I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!

A Chewy Habit!

With sensory processing disorder comes the need to fiddle, chew, or do other stimming activities. As an adult this can be hard as I will explain in another post, but I recently came across a company called "chewigem" who have come up with some wonderful products to help with some of these. I was lucky … Continue reading A Chewy Habit!