EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!

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January Blues!

January is always a blue month, I guess for most people, but I really do find that it is for me. For others it might be the reality of the resolutions kicking in and the resolve diminishing or completely going, or it might just be that pay day for those who work is a longer … Continue reading January Blues!

New year’s eve

I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to … Continue reading New year’s eve

Merry Blogmas!!

OK so as far as Christmas is concerned my blog has been slightly absent!  I have written about my Christmas card tradition, and hinted at other things but I haven't actually done anything really Christmassy.  Now this is in part because I've had a huge problem getting into the Christmas spirit. I did my shopping, … Continue reading Merry Blogmas!!

Normal conversation??

  I seem to have totally lost the ability to what most people would call a "normal conversation" I don't know whether this was a gradual process or it has just come about but I don't seem to be able to speak to people anymore!!  Let me explain. I met an old friend in town … Continue reading Normal conversation??

Why I Still Send Christmas Cards!!

Being disabled becomes isolating, sometimes the only people I have contact with are my mum, dad and carers for sometimes days at a time.  My only other contact can be through a screen with either people I've never met, or rarely meet.  It has become even worse with the unspeakable problem because it is harder … Continue reading Why I Still Send Christmas Cards!!

Urology awareness and a very frustrating morning!!

I found out yesterday  (when looking on a few incontinence support websites) that September is urology awareness month. Now I have to admit I am one of those people who have got a bit of "support this months" fatigue. There doesn't seem to be a month without some sort of charity awareness being supported. But … Continue reading Urology awareness and a very frustrating morning!!

Little visitor and looking after mum!!!

Yesterday we had a visit, a very small very fluffy little baby bird. It took us a while to work out what it was and if it was ok. Thankfully it was hopping around and eating and drinking all afternoon, but it took us a while to decide what bird it was because to start … Continue reading Little visitor and looking after mum!!!

Surveys surveys surveys!!

When I became disabled I was training for a teaching degree, which after postponements and an awful lot of trials and tribulations I achieved. ¬†However since that time my health has become steadily worse and so I've been unable to work. ¬†Life on benefits is far from what the media can make it out to … Continue reading Surveys surveys surveys!!

Boring days and isolation!!

I've had a yet another boring day today so thought it seemed the perfect time to share about how isolating disability can be. Since becoming disabled my social circle has become very small anyways, not necessarily through anyone's fault but more because going out full stop is rarer. Before my disability I was training to … Continue reading Boring days and isolation!!