Catheter woes and what is a supra-pubic catheter??!!

No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four …

EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. …

Awareness month and What you need to know about my EDS part 2!!

I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, …

Catheter update and a few crafty want to do’s for this year!!

OK so I know the title probably isn't the biggest draw, and it's rather long!!  As you know,  from my new years posts, I don't make resolutions or set goals so that couldn't be the  title!! I thought however that as I've got a number of crafts I'd like to either master, try or continue …

New year’s eve

I've never enjoyed new years celebrations, it's all about looking back and reminiscing about what's happened in the year and looking forward to the next and all that will bring. Unfortunately for me it's always been a long list of things to remind me of all that I don't have and a look forward to …

Happy Christmas

Happy Christmas to all of you lovely people who've take the time to read my blog this year. I've been so grateful to each and every one of you. When I first started writing I felt as though I was writing for myself only, I know that I haven't got a huge following but I …

Waiting is torture!!

This week' blog post is going to hopefully not be the only one!!  I've got a few Christmas posts I'd like to do too, but this first one is about the catheter!! It has also been unfortunately waiting for a week now because I've been struggling to keep on top of everything this week. I …

Appointments again, and when minor victories feel like winning the lottery!!

.....Although I wouldn't say no to the lottery win!!! Firstly I want to apologise that this post is a couple of days later than I normally post, and also if I ramble but I have a few things that I hope you will share with me!!!  The reason that it is late is because last …

Normal conversation??

  I seem to have totally lost the ability to what most people would call a "normal conversation" I don't know whether this was a gradual process or it has just come about but I don't seem to be able to speak to people anymore!!  Let me explain. I met an old friend in town …

My insomnia and sleep kit!!

As my post on my emergency kit was so popular I thought I'd share with you another "kit" of sorts - my insomnia and sleep kit.  I've suffered with insomnia now for many years. I started with one or two nights a month, then it became a week. That then crept up until it was …