Why being called a medical “enigma” or “puzzle” is not helpful

A few days ago I was talking to a friend of mine (who also blogs and can be found at https://danonwheels.wordpress.com/) and we got onto the subject of doctors, I had had a particularly unhelpful doctors appointment where 95% of my issues and concerns had been dismissed as something that she couldn't do anything about, … Continue reading Why being called a medical “enigma” or “puzzle” is not helpful

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Meet my new mascot & the life of a grown up fiddler!!

Firstly this post has been written for a few weeks now, just waiting for photos which I took the other day.  Unfortunately my brain fog, summer holidays and severe writers block has left me with no posts to update you with!!  I'm hoping that I might be able to remedy this over the next few … Continue reading Meet my new mascot & the life of a grown up fiddler!!

A plea for all

I today made a telephone call! Ok so to a lot of people this is not a big deal but to me these cause a huge panic. It starts when I decide I need to make the call, usually this is a last minute decision because if I have time to think about it for … Continue reading A plea for all

EDS Awareness Month……….and what you need to know about my condition!

May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!

Brain Fog and erm…

I open my book and stare at the pages, I can't remember what I'm supposed to do, how do I read? What are these things on the pages?...............This is Brain Fog. I start a sentence, a few words in and my mind goes blank, what am I doing? What am I saying? Where was I … Continue reading Brain Fog and erm…