Firstly this post has been written for a few weeks now, just waiting for photos which I took the other day. Unfortunately my brain fog, summer holidays and severe writers block has left me with no posts to update you with!! I'm hoping that I might be able to remedy this over the next few … Continue reading Meet my new mascot & the life of a grown up fiddler!!
Having a chronic illness or long term condition usually comes with the need to have many hospital and doctors appointments. You can sometimes get to know the staff so well that they know its you on the phone before you identify yourself, and treat you like a friend when you walk into the surgery etc. … Continue reading Medical overload and operation stress!
No one said that having a catheter was easy, and I've been under no illusion that this was the case. However my bendy body doesn't seem to think that having a catheter is bad enough on it's own, and so this past week and a bit I have had to call the nurses out four … Continue reading Catheter woes and what is a supra-pubic catheter??!!
May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
With sensory processing disorder comes the need to fiddle, chew, or do other stimming activities. As an adult this can be hard as I will explain in another post, but I recently came across a company called "chewigem" who have come up with some wonderful products to help with some of these. I was lucky … Continue reading A Chewy Habit!
I've started the following post about half a dozen times. It's been easy to write in the sense that the words have come easily but, as you will see, actually writing the post has been hard. I've lost over 3 copies and had interruptions and problems, with family being here, finding time to myself. So … Continue reading Sensory Overload!