May in my EDS world is awareness month. As I've explained to you before I have got a bit of awareness month fatigue, there are so many of them and so many different days. However for me awareness month is how I found out about EDS and how I finally got some of my answers. … Continue reading EDS Awareness Month……….and what you need to know about my condition!
I decided about half way through my previous post that not only was the post getting incredibly long, but it was also going to make everyone switch off!! 31 questions would be fine if they were really short answers, but they aren't! So I apologise for what might be two really long and tedious posts, … Continue reading Awareness month and What you need to know about my EDS part 2!!
With sensory processing disorder comes the need to fiddle, chew, or do other stimming activities. As an adult this can be hard as I will explain in another post, but I recently came across a company called "chewigem" who have come up with some wonderful products to help with some of these. I was lucky … Continue reading A Chewy Habit!
Last night I went up to bed. I walked into my room, and despite my mum having spent hours that morning tidying and cleaning my room the first thing I noticed was that my teddy bears had been moved. I looked around, where were they? The first words that came out of my mouth, before … Continue reading I sometimes wish my brain worked like other people’s!!
I haven't managed to write a blog post for a bit now and thought I better give you an explanation. There are two reasons, firstly it's the Easter holidays so I've not got the space or time to concentrate on writing. Secondly I had planned to have a number of finished posts ready so that … Continue reading Having a break!!
So I've been writing a number of posts recently, however it's not that I've got writers block more that I've got too many thoughts that I can't actually finish one off. I've not been out in pretty much 2 weeks which is one of the posts I've got in the pipelines, but it seems that … Continue reading Too many thoughts and none of them finished!!
A friend of mine noted on her Facebook page today that two friends had asked her about how she was feeling. She gave two different answers because of their relationship to her and the conditions they had. To one friend she had replied that she was "fine" and to another who shared her condition she … Continue reading The many faces of chronic illness!
One thing that a lot of non-disabled people don't understand is the sheer panic, annoyance, anger, inconvenience and, or upset moving a disabled person's mobility aid can cause. It's almost difficult to explain just how we feel when it happens because you have very little to compare it to, but what it pretty much equates … Continue reading Moving my legs!!
I open my book and stare at the pages, I can't remember what I'm supposed to do, how do I read? What are these things on the pages?...............This is Brain Fog. I start a sentence, a few words in and my mind goes blank, what am I doing? What am I saying? Where was I … Continue reading Brain Fog and erm…
This past week or so, has again had a number of appointments in it and yet again has been stressful. Dad is still off (as it's now half term), and still can't hear and the reason I was feeling ill was I had yet another chest infection. Since being diagnosed with asthma more years ago … Continue reading Yet more appointments and the funny places your mind goes in the middle of the night!!