Summer days out!!

Firstly I wanted to say that I was totally blown away by your response to my post on “the unspeakable problem”. Far from being unspeakable there was such an outpouring that I was totally in awe of the courage of people out there who, like me are dealing with incontinence everyday/all the time 24/7. People were sharing both with me and each other, I was so humbled by it all. I hope to continue to keep this conversation going by keep sharing with you all my appointments and experiences. I hope that possibly you might like to join me on my journey and if you would, that you might perhaps follow this blog for me. There is no pressure but by following you will get updates so can keep up with the trials and tribulations I will undoubtedly have when I go through whatever treatment I get offered. 

So to today’s blog post, which due to me deciding it was a good idea to do in the middle of the night I have already lost half of!!! Tiredness and phones don’t mix so I deleted a large part of it and couldn’t retrieve it. Moral of the story?? Wait until you’re awake before editing your blog!!!

So anyways we as a family don’t have the best track record with family days out. Whether it’s the weather, arguments, stress and planning something usually happens. Yesterday we decided to go to a pick your own place which isn’t too far away, and yes you guessed it out trip didn’t quite pan out the way we’d planned it!!! Being in a wheelchair usually means that we have to plan very carefully, every detail, we can’t really be spontaneous  (which in my case is a good thing anyway as I cannot cope with last minute plans or changes etc).  We have my 8 year old niece staying with us for 3 days and 2 nights while my sister is at a friend’s wedding. My niece is a fruit fiend, having once had a tantrum in Waitrose not for the usual sweets but instead for an apple, and she’s also an outdoor soul. Great combination we thought for this trip where we could pick some fruit and then have some lunch finishing the day off at the garden centre which is just up the road from the PYO. Hitch no.1 came when we realised 2 days ago that dad had a hospital appointment booked at 11.15am so our morning plan had to change so he could attend. We then decided to go after his appointment, have lunch first then pick the fruit; then afterwards if there was still time we’d go to the garden centre!!! After a fairly successful lunch the family all went off picking and I settled in the sun, with a coffee, to read……

This is the life!!!

But 30 minutes passed when back came the family, with no fruit or veg. The crops were bare!!! No ripe plums or raspberries and so my plan of making jam with our bounty were scuppered and no raspberries for the freezer either. 

So what do you do when you can’t get fruit?? Garden centre for cakes!!!! Lol, ok not healthy but instead of health we went for………..

YUMMY

Hopefully our next trip out will be more successful!!!

An unusual request to put the crafty back into the CraftyInsomniac

Well today I’ve been getting back to being a bit more crafty, it’s always hard for me now to admit that I cannot do as much crafting as I would like to but with a lot of adaptation I can still do some things.  Cake baking and decorating is one of my loves, I love the creative nature of turning something that tastes good into something that looks good too.  I don’t get chance to do too many, which is probably a good thing because they are hard work.  I would not be able to do this any more at all if it weren’t for my mum she’s amazing and now not only lets me use her kitchen to explore this passion, but also gives me such a big hand that allows me to utilise my skills without completely crippling me.  Baking for me now means that mum gets everything that I need out, sets it all out in the kitchen for me within distance and even decants heavier products into smaller sizes so that I can handle them.  She gets the mixer out for me and  then once ingredients are mixed together she helps me lift the mix to put into tins and puts them into the oven, and then gets them out when ready.  When decorating again she gets everything out for me and helps me with whatever I need, lifting, moving and helping me constantly and making sure that when (like today) my POTS decides to rear it’s ugly head she makes sure that I take breaks and gets me drinks and helps me to recover before starting again, I seriously could not do my loves like this without her.

So onto this strange request.  The friend in question is not what you would call mainstream, it’s one of the quirky things I love about her.  Now her little girl, who she affectionately has nicknamed Doodles, is having her 6th birthday.  I cannot make it to the party, but as her cake decorating skills have become legendary (for their lack of skill as opposed to being crowning glory’s, hopefully no offense will be taken here) I asked if she wanted something made for her.  She was going to make the cake herself, which was fine but she asked me to make cupcakes.  Expecting some pink fluffy unicorn cakes I have to admit this one threw me!!  I will reveal later after some more info!!!  Wow, OK well all I can say is that although these are the most unusual request I’ve had, they certainly aren’t the hardest.  I’ve done everything from a family dog to a chocolate explosion, I’ll add some photo’s so you can see, so I’ve had some rather involved ones.  These cupcakes were nice and easy, chocolate cakes with chocolate icing.  I set to and my wonderful malfunctioning hands very soon had decided to seize up while weighing my eggs (the best way I’ve found to make good cakes every time) and one promptly ended up on the floor!!!  OK great thankfully I had spare, oh and before I started I realised that I’d asked for all ingredients except for icing sugar which is obviously needed for buttercream, hoping that the third thing would just be my malfunctioning body not any other major disaster I would get going!!.  Thankfully mum went to the Tesco express up the road for my icing sugar, and cleared up the egg for me which couldn’t be salvaged!!!  So stage number one was done, cakes baked, in the oven, mum cleaned up while I had my first break.

Cakes baked, stage 1 complete, you can’t really tell yet what they are going to be!!!

 

So onto stage number 2, fondant icing made into eyes and mouths. Still not giving it away. But I was getting very fatigued, thankfully mum was going to make a drink. I made the chocolate buttercream and left it to chill while I rested!! My POTS was also going mad so rest and feet up while I drank my drink was definitely needed. 

So final stage was putting together. Unfortunately I’d underestimated my buttercream so a bit of quick thinking was needed, mmm wonder if I can get away with it!! Yes I thought, these cakes were out of the box enough for me to get away with a little lateral thinking!! So the finished results are…….

Poo emoji cupcakes, yes you read that right!!! As I said not the most “normal” birthday cakes!!! My lateral thinking was to make “stepped on” poo emojis which, I think, I just about managed to get away with!!! 

So cupcakes are made ready for my friend to pick up tomorrow. I have to admit that they did take a lot out of me, my pain levels are high, my feet the size of mini football’s and my POTS is playing up.  I know that to most people this level of suffering would mean the end of this particular hobby, but I will not let my illnesses and disabilities stop me from doing things I love. I might have to adapt and limit things a bit but my crafty side cries out to be fed, if I couldn’t ever do these things I’d have no outlet for it and so I don’t mind putting up with the discomfort for the joy that the finished articles hopefully bring!!!

Other cakes I’ve done are……

These are just some of the ones I’ve done, they have been at various stages of my disability so haven’t all been as hard as others to complete. They’ve all been harder to do than for some people just for the simple fact that my bodies doesn’t usually play ball. But I just can’t face having to give it up completely so I am grateful to my mum, yet again, for all her hours of help and support which allow me to be able to continue hobbies like this.  I wonder what my next request will be one thing it won’t be, I shouldn’t think, is quite as out of the box as this!!!