As predicted because I have now stopped and we have got back to normality, I have crashed. My fatigue levels are so unbelievably high, made worse by the weather (I think) because it is so dark and grey all the time and so all I want to do is fall asleep. The catheter continues to be an issue, it is leaking from the valve so I am having to wrap it to stop my leg from constantly being wet. I have emailed the company who supply my catheter equipment so I really am hoping that they will be able to give me a solution for this at least. As usual when my fatigue is high, my brain fog is worse and I’m forgetting simple things. I have had two weeks now since everyone went back to work and school and yet my fatigue continues, I fear that another trip to the doctors will be necessary but I’m not sure quite what she can do!!
So to my other issues, which again have arisen and yet again I cannot control. Firstly is the wheelchair issue again. As I think I’ve said before (although with my brain fog I might have told someone but not posted it on my blog, we will never know!) I thought I was getting somewhere with this again, my GP agreed with me that my mobility scooter is no longer meeting my needs. She re-referred me to wheelchair services who, because I’m now at the top of the list for housing, started to proceed with my application. I had phone calls (which as per usual were extremely difficult for me to cope with) with the wheelchair services who said that although they will progress my application, they cannot release any chair to me until they have done a home assessment and of course they cannot do a home assessment until I either move out and into somewhere that is completely accessible; or until we can adapt at home properly to meet my needs. It’s the same thing again and again, I can’t do one thing until the other is sorted and I can’t do that until something else happens. I feel like I am always on a one step forwards, two steps back and then another two back just to rub salt in the wound!! It’s left me feeling rather down, and again looking at the pictures of the wheelchairs which I need but can’t afford, or qualify for. I can no longer self propel as my hands are too bad and I am struggling to use my mobility scooter as I have said before. It’s like I am stuck in a time loop. I don’t know how to get out, housing have been quiet since the last time they offered me a totally unsuitable place which was last year. My other issues are the housing issues (with realistically not being able to move until after I’ve had my two operations), trying to sort out about getting the full time catheter so hopefully I can get on with my life and all the usual issues that life throws up!! Let’s just hope that either some rich person reads my blog and wants to buy me all the adaptations and equipment I need or I win the lottery, which do you think is more likely?!? I’m thinking that I will be stuck for a lot longer to come!!
So my wheelchair envy………
It’s like my petrol head self is rearing but with being disabled it’s also (as well as watching and hoping to go to motorsport events and races) being filtered into having wheelchair envy, they’re all so good!! Can I have one that folds, or would I prefer it to tilt, the possibilities are endless! But at the moment it is just that, wheelchair envy or hope!
So before I totally bum everyone out and turn you all off reading any more I have finished my first mini craft project of the year, the embroidery that I was doing. I have also started another little one that my mum found, which was again from Molly Makes! Hope you like them……..
First one finished.
Second one started
What do you think? Which wheelchair would you choose? Do you like my little craft projects? What do you think will be next, can you guess what my next project will be? I’d love to hear what you think.