The unspeakable problem!!

I know it’s not something that most people talk about and there is a reason for that but today I want to talk incontinence. It’s not talked about because it is embarrassing, it’s not interesting and it’s not something that you want most people to know about.  It’s not something that you can just chat about with friends but when, like me, you have it you can’t just forget about it. So I’ve decided to be open with some of my struggles with it in the hope that at least one other person reads it and realises that they aren’t alone. I’ve got separate diagnoses for this, I’ve got mixed urinary incontinence functional incontinence and nocturia. What does that mean?? To be honest not 100% sure and to me it doesn’t matter. What does matter is that I don’t get the normal urge to go to the toilet, my body doesn’t tell me that I just need to go to the loo instead it waits and only tells me when I’m absolutely bursting to go and this means that by the time I get to the toilet I’ve already started to go. As discussed before I have a big problem with staying asleep, but if I did stay asleep I’d be waking up needing to go and the same problem then happens in that I can’t get there in time. I have seen urologists, specialist physiotherapists and had tablets, exercises and even stimulation none of which has worked. I now have an incontinence nurse who prescribes pads. 

The biggest problem with pads is none are fit for my needs, well none that we’ve found. I either leak meaning I’m having to change clothes 3 or 4 times a day, or they’re uncomfortable or both. The new ones I’ve had from the nurse didn’t stick, and my niece wondered what was in my trousers. I think that the bigger pads are designed for older bed bound people not people like me. Sensory wise I hate having to wear pads and with having to change all the time so my GP and I agreed that something more long term is needed and so we’re looking into the possibility of full time catheters. It’s testament to the fact that I am at the end of my tether with this because I hate hospitals and the thought of another op fills me with dread, but I can simply not go on like I am. So it’s another waiting game, seeing if and who will consider me and then which sort of catheter I might be able to have. Who knows. But for this and future posts about this the unspeakable problem is becoming speakable, I’m not saying it’s not embarrassing but it shouldn’t be hidden away. We can’t help it, it’s our bodies having some sort of problem. Mine is my wonky body not working correctly again. 

So it’s onto the next stage for me, urology for possible catheters. More questions for now to then hopefully sort out my unspeakable problem!!! 

Eurgh look at the range, not the height of comfort or fashion in any way shape or form!!! (And these aren’t the worst!!) Pads are for illustration only and aren’t nearly as bad as my actual pads!!!

Advertisements

15 thoughts on “The unspeakable problem!!

  1. Tracey says:

    Those pads are small compared to the ones I need. My bladder is much the same as yours. High 5 to you for discussing this, though!

  2. Dee says:

    I totally understand how you feel as I have been incontinent for over 20 years. The pads are uncomfortable to wear and make me sore. I have Spina Bifida Occulta and it has affected both my bowel and bladder.

    I am hoping to have Motrofanoff once I can lose some weight. Currently I am doing the weight loss service at my local hospital which I hope will mean I can have weight loss surgery.
    Dee

  3. I have never had this issue, but I think your honesty and openness about this is so important. You’re going to help so many by being so open.

    Xx

  4. rosa1eeen says:

    You’re so brave for talking about this. I really hope it all goes well for you!
    Good luck!

  5. Nicki Berry says:

    I’m incontinent following cauda equina syndrome. I wear big pads (like nappies) and mostly, they don’t show. I tend to wear baggy blouses and I’m a wheelchair user so I’m sat for most of the time. I also self-catheterise once a day because I can’t fully empty my bladder.

  6. I’m so sorry you are going through this but thank you for sharing your story. Showing other women who may be going through this need to know they’re not alone!

  7. Sophia Leigh says:

    You are so honest about this, not many people would be so huge respect for that hunny! Showing women who are going through something similar that they aren’t alone.

    Love sophie
    Sophialeigh.net

  8. effcaa says:

    Oh wow, thanks for sharing this!!

  9. Candace says:

    Thank you for being so honest.

  10. I wish more people would talk about this as maybe it wouldn’t be such an “embaressing” topic for some. Your story is going to help so many others with this.

    Jordanne || Thelifeofaglasgowgirl.co.uk

  11. I really hope you can find a remedy and will feel better soonest. Salute for discussing this..hold on, this will pass..

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s