I've been having a bad few days so haven't been up to posting. Today's post I decided to write about my carers. I'm lucky in a number of ways but one of those is my wonderful carers. I've deteriorated so much I have 2 different ones. I have my wonderful mum, who I love spending … Continue reading Carers and phone calls
I have thought long and hard about today's post, writing and rewriting things that made no sense. The problem that I had was that yesterday I had another bad day, my anxiety at full after another problem with trying to sort out a doctors appointment. I would have in the past turned to my GP … Continue reading Anxiety, Depression, Brain Fog and coping with change.
So when I was diagnosed with EDS it was a huge learning curve for me. Learning that things that I'd lived with for years were not normal and that it was ok to say that these things lead to pain or stress or both. I knew that I had something and was diagnosed as hypermobile … Continue reading Why my embracing my sensory and sensitivities is not making them up.
So I wasn't going to post today thinking that my day of sitting on the sofa, doing nothing apart from watching one of my motorsport loves of Formula 1 was rather uninteresting. I can't really say much more than that, I have indeed just been sat today but I thought that I'd still share something … Continue reading “I’m a human of very little brain and technology just scares me!!”
So yesterday was a bad day. Seems the pressure and thunder affects me more than I thought and whilst in Waitrose I almost blacked out and also was feeling terribly seasick with my POTS. However it's the funny ish moment that happened after that I'd like to share with you today!!! Mum and I were … Continue reading When you realise your scooter isn’t even as fast as walking!!!
Let's talk doctors. When you are a "normal" person it is nice to have a good relationship with your GP, however when you have a long term condition it is essential. Your GP is often the only one willing to send you to see specialists and to understand your everyday struggles. I have been very … Continue reading Let’s guess who my GP is!?!
A post about my blood test traumas so please don't read if you don't like reading about that!!! So a few weeks ago I had a batch of blood tests. Not too bad for most people, but our local surgery has recently stopped taking blood and the phlebotomists there have been the only ones, for … Continue reading Not your average mother daughter outing!!
Ok ok I know too many posts, but I really want to make a go of this and need to be seen to do that!!! My first purchase arrived today so I wanted to share it with you. Let's talk shoes. Every girls dream right??? Not mine, I'm the first one to admit that I've … Continue reading I know you’re going to get bored of me but I wanted to share a purchase with you!!!
So it struck me again this afternoon what a mass of contradictions I really am!! I was sat doing a jigsaw puzzle (another one of the things that eds has curtailed, but more about that later!!) watching first the end of Le Mans 24 hour race and following that one of the top gear specials!!! … Continue reading A mass of contradictions!!!
As always happens with my blog posts I started thinking about one post and ended up writing something totally different!! Anyone who knows me knows that I have a rather strange relationship with my dad. He is a real grumpy old man and moans constantly about me and my things (equipment for my disability and … Continue reading Fathers day.